So Much So Fast

I saw the most amazing film today.

So Much So Fast is a documentary that tells two parallel stories. Stephen Heywood, three years younger than me, was diagnosed with ALS at age 29. The film follows him and his family as the disease progresses, and it's the fullest, most candid presentation I've seen. (Granted, there's no ALS category at the Oscars, but at this point the topic's been addressed quite a few times on the big and small screens.)

The second storyline is about the ALS Therapy Development Foundation, established by Jamie Heywood, who refused to accept that there was no cure for his brother. The group has since become a powerhouse in ALS research. Its sense of urgency is appreciated by all of us who stand to benefit.

If you want an honest and accurate look at what it's like to live with ALS, check this one out. You can sign up through the first link above to be notified when it'll be screened near you. And don't worry: Stephen's still alive when the curtain goes down.